FAYOLA K J FRASER
The mortality rate of breast cancer in T&T has been estimated at approximately 23 per 100,000 women, with one in nine women developing breast cancer in their lifetime. However, there exists a less obvious battle that many women diagnosed with breast cancer are forced to contend with, aside from the obvious primary concern of survival. Grappling with the decision whether to undergo a mastectomy (removal of the breast) is often a grievous and difficult time of turmoil for many women with breast cancer, with many external parties often diminishing this mental and emotional battle to concern for aesthetics.
Being a core part of the female and feminine identity, having breasts is far more than aesthetics, as it relates to reproduction and relationships, and the loss of them can cause greatly diminished feelings of femininity.
In T&T and the English-speaking Caribbean, Dr Rajen Rampaul, medical director of the Pink Hibiscus Breast Health Specialists, is a Breast and Oncoplastic Surgeon trained in surgical oncology and plastic surgery. In his role as a breast cancer specialist, he looks after women with simple and complex issues such as breast pain, screening, diagnosing and treating breast cancer, and reconstructing women’s breasts after cancer removal surgery.
Before Rampaul’s return to T&T from the United Kingdom (where he attended the universities of Nottingham and Newcastle), although there was a high rate of mastectomy, there were no doctors locally who addressed breast reconstruction.
Rampaul is dually specialised, meaning that he can perform a mastectomy and reconstruction at the same time. He was a pioneer of this service, opening up opportunities and avenues for women to receive care from the moment of their diagnosis, throughout their journey with cancer to rebuilding and reconstruction.
The mastectomy is the surgery for the removal of breast tissue as a means to treat or prevent breast cancer. Mastectomy can refer to a total mastectomy, where the surgeon removes the entire breast, and possibly a few underarm lymph nodes, a skin-sparing mastectomy, where the skin over the breast is left in place while the tissue, nipple and areola are removed, a nipple-sparing mastectomy where the breast skin and nipple are saved and a double/bilateral mastectomy, where both breasts are fully removed. In some cases, a mastectomy is done to reduce the risk of getting cancer for women who are at high risk, such as those with a BRCA gene mutation.
A woman can also be treated with breast-conserving surgery (lumpectomy), which saves most of the breast.
In essence, a mastectomy or lumpectomy is a primary option for women diagnosed with breast cancer to rid themselves of as many of the cancerous cells as quickly as possible.
Women in T&T today have more options. Rampaul indicates that with advancements in medicine, full mastectomy has even become somewhat outdated. There are new techniques that he has employed in T&T such as fat grafting, which implants stem cells to regrow and redevelop breasts, and reconstructive surgery following a mastectomy or lumpectomy. He credits the evolution of medicine with offering women the opportunity “to feel whole and not deformed”, as the mastectomy can often be a brutal operation.
Rampaul has published research alongside psychologist Dr Arianne Shepherd, focused on the link between depression and body mutilation that accompanies mastectomy in T&T.
According to their research, over 80 per cent of women who underwent mastectomies were subject to depression, abandonment by husbands, failed marriages and broken homes. “It became difficult for these women to return to work or resume normal activities, as they suffered with shame,” he says, explaining the physical, psychological and psychosocial impact of this life-changing surgery.
He described the way that many women felt about their cancer diagnosis as “earth-shattering, devastating and lonely”.
For many women who rightfully feel concerned about the after-effects–both mental and physical–of mastectomies, because of the progression of science and medicine, there are now options that do not include full breast removal, or offer immediate reconstruction of the breast.
Rampaul’s motivation to serve women throughout their breast cancer journey is clear. He advocates for the importance of holistic care, including spiritual and psychological in addition to the physical, as upon receiving their diagnosis many women leave his office devastated and lonely. “My practice revolves around the woman,” he says, “and my role is to support and assure them that there will be a tomorrow”.
Rampaul is passionate about his work and is an advocate for annual screening and early detection. Early detection, according to Rampaul, can pick up even the tiniest abnormalities, which sometimes indicate pre-cancer, meaning unusual cells which may or may not eventually become cancerous. At that stage, he said, “the treatment is less and the options for full survival are greater”.
His professional stance calls for a multipartite approach which allows for the highest likelihood of early detection. This approach includes the combination of self-checks, annual mammography, ultrasounds if necessary and doctor’s examinations. He also encourages women to not only do their annual mammography but to consult with their doctors to understand their risk profile as it relates to cancer and seek assessment as soon as they notice any unusual changes.