I remember the first time I walked into the “Prem Unit” at the Port-of-Spain General Hospital, and a general hospital it certainly was for children. There were a couple of paediatricians but no subspecialists. In 1977, there were no neonatologists. It was not a neonatal unit, it was a dump where babies who were born too soon were sent to die under the care of two elderly, overworked paediatricians who had not been allowed to take vacation for over 15 years, i.e. since Independence. The mortality was 50%. In plain language, half the premature babies sent there died. That was around 20 babies a month.
Most of the work on the babies was done by recent medical graduates who changed their title from ‘medical student’ to ‘intern’ from one evening to another and were thrown into the dump to care for babies weighing three and four pounds with little immune defences, immature lungs and poorly functioning digestive systems. There were no nurses trained in taking care of newborns, far less premature ones.
Incubators were scarce so it was common to see two prems inside one incubator. There was no x-ray equipment inside the unit and sick babies had to be carried quickly over to the x-ray department to get an x-ray before they turned blue from cold or pulmonary failure. The lab demanded 5-10 mls of blood for any test in tiny babies who had an average blood volume of around 250 to 300 ml. Four blood tests bled them out, so we went without many tests.
Above all, there was no policy. About anything. For example, it was common to have doctors come to the Prem Unit after making rounds on the Gastro Ward, a highly infectious area. Some did this without cleaning their hands. Often, this was because there was no soap either on the Gastro Ward or in the Prem Unit. Dedicated doctors and nurses washed their hands in alcohol. The smarter ones went to the Prem Unit first.
This situation persisted for the next ten years and mind you, this was the age of the oil boom when money was pouring in and out of T&T like salts. None of that money reached the prem units. I do not recall any journalist writing anything about this. I do not recall any politicians, opposition or not, standing up in Parliament and making a statement about this. And certainly, no parents ever complained in public or in the courts about how the government was managing the prem units, ours and the one at San Fernando.
How times have changed. Early last year, seven babies died during the course of one week at the PoSGH NICU, there was an almighty outcry about it in the media and it was a topic of public conversation for weeks and that was excellent. Of course, no one bothered to ask how we had been doing over the years. No one bothered to ask why we were still using the same dump, 22 years after the “Review of Four Neonatal Units in Trinidad” in 2003 by Dr Barbara Johnson, PAHO temporary advisor, when the neonatal mortality rate was 26 per 1,000 live births. No one asked why we did not have more neonatologists and trained neonatology nurses, another recommendation of that review? Yet, our doctors and nurses had been able to decrease the rate to seven in the intervening years.
And no one asked how our mortality stacked up internationally, taking into consideration that WHO considers a neonatal mortality rate of under 12 per 1,000 live births to be acceptable and ours have been running at seven per 1,000 live births for the past five years and we compare favourably with other Caribbean states who average ten to 11 deaths per 1,000 live babies or South Africa, which is at 11 or India, 20. We are significantly worse off than the European Union and China, who are at two per 1,000 live births.
Why aren’t we doing better? Well, read the above again. Since 2015, we have had one neonatologist, Dr Marlon Timothy, in the Public Service. We now have two. A third to come possibly in July and doctors and nurses are voluntarily going abroad to study neonatology without assistance from the Ministry of Health. Because of Dr Timothy and building on the shoulders of former neonatologists, we now have a National Neonatal Committee, a National Neonatal Policy, standardised management of the most common neonatal medical problems and research started on our local medical newborn illnesses.
Deaths in newborn babies are set to drop slowly in the next five to ten years. There will always be the possibility of a cluster of newborn deaths but the trend is clear. If we maintain progress, it is upward.